The main aim of this Ph.D. Study is looking at how you find the program- you can do as much or as little of it as you like
Please ensure you do the baseline and the follow-up research survey.
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HUMAN RESEARCH ETHICS COMMITTEE APPROVAL NUMBER: H-2017-101PRINCIPAL INVESTIGATOR: Dr Camille ShortSTUDENT RESEARCHER: Amy FinlaySTUDENT’S DEGREE: PhD Medicine
You are invited to participate in the research project described below.
What is the project about?We want to explore how the Internet can help men with a history of prostate cancer to build their skills and engagewith physical activity
Why Be Active?Regular physical activity participation before, during and after cancer treatment has been shown to be verybeneficial. It can improve your mood, increase your energy levels during the day, improve your physical strengthand improve your quality of life.
If you are unsure whether you should participate in this research, please talk to your GP first
Why Online? We know that programs for cancer survivors are face-to-face, but this does not suit everyone. Onlineprograms are cheap, easy to access, do not require travelling to appointments at clinics or gyms, and you can go atyour own pace and in your own time. We are interested to see if they could work for men with prostate cancer.
This project is being conducted by Amy FinlayThis research is being conducted as part of Amy Finlay’s PhD at the University of Adelaide under the supervision ofProfessor Gary Wittert and Dr Camille Short from the Freemasons Foundation Centre for Men’s Health, School ofMedicine.
Why am I being invited to participate?We need men who have been diagnosed and treated for prostate cancer to help us evaluate the online physicalactivity program we have developed. By conducting this research we hope to learn what is good about theprogram, and what areas we need to work on to make it more relevant and useful to men who have been treatedfor prostate cancer.
Am I eligible?To be eligible, men musto Be over 18 years oldo Have been diagnosed with prostate cancero Have completed active treatment for prostate cancer (e.g., surgery or radiotherapy) and currently bein remission (men who are undergoing hormone treatment as a preventative measure are eligibleo Be able to speak and read English fluentlyo Have access to the interneto Be able to participate safely in physical activityo Not already participating in 150 minutes of moderate-intensity aerobic activity per week or more thantwo sessions or resistance-training.
Before we start: We will ask you to fill in a health screening form before we can begin (will be sent to you in a consent forman information pack)• Click on www.pchf.net.au which will take you to the study webpage• Complete the screening questionnaire• If eligible, you will be asked to register with the website and a private account will be made for you• Complete a pre-program questionnaire• If you are eligible you will be randomised either into a standard web condition (containing informationcollected from several publically available websites) or a tailored website condition (containing informationtailored to your individual characteristics). You will not be able to choose which website you get access to,and you will not be informed which website condition you are in. Though, those allocations to the wait list will be given access to the tailored website after the study period.• Access the online program: you can log in and use it as much as you like for 4 weeks• After this 4 week period, participants will be asked to complete an end of program questionnaire using anemail or text reminder.
What happens after the study?After final data collection is complete you will be able to access the website for an additional 4 weeks. Thoseallocated to the standard website condition will be given access to the tailored program during this time. After thisperiod, access to the website may be restricted for research or quality improvement purposes. We will send allparticipants a brief summary of our findings.
How much time will the project take?The baseline questionnaire will take approximately 15 minutes to complete; the final questionnaire will take approximately 20 minutes
After the baseline questionnaire, you will be given access to one of the websites. You will be in control of when youlog in, and how much time you spend on the website. We estimate each week will have approximately 10-15minutes of information, videos and programming to work through, however you can spend as much or as little timeon the program as it suits you.
Is there any risk associated with a participant in this project?There is minimal risk of harm or injury (physical activity is recommended for cancer survivors and our advice is in linewith national guidelines). It is possible that some participants will experience some muscle pain or soreness as aresult of becoming more active. The benefits of physical activity are expected to far outweigh any potential harm.However, please seek medical advice from your doctor if any issue arises or call 000 in an emergency, and let theresearch team known about any issues. It is common to find that you might get sore or tight muscles if you pushyourself too hard too early. If you feel any discomfort answering questions, you have the right to withdraw from atany point.
What are the benefits of the research project?• The physical activity information you will receive will be aimed specifically at men with a history of prostatecancer. You may increase your knowledge and skills and may be more motivated to participate in physicalactivity. However, this cannot be guaranteed.• This research is building knowledge of what programs will work for whom, so that men like you can getaccess to an online support service that meets their needs and takes their lives into account
Can I withdraw from the project?Participation in this project is completely voluntary. If you agree to participate, you can withdraw from the study atany time.
What will happen to my information?Your privacy is important to us. Of importance, no identifying information will ever be published about you.All information will be stored on a password-protected network drive at the University of Adelaide. To protect yourprivacy, any personal information is not connected to any information gathered from the online program. Theinformation we collect will primarily be used to access how useful the internet can be to support men with a historyof prostate cancer to engage in physical activity. Thie information will also be used for publication in key cancerjournals, and for the PhD Thesis and PhD presentations. The results will be made available via publication in2017/2018 under Finlay, Evans, Wittert and Short. Once the information is in the public domain it may also be usedby others interested in offering physical activity programs via other means.
Amy has a background in men's health, psychology, health promotion, cancer and public health. She first worked for the Freemasons Foundation Centre for Men's Health as a scholarship student investigating men's participation in walking groups for the Renmark River Council and the University of South Australia. She has been a research assistant for the Discipline of General Practice, and the School of Rural Health in the Medical School in the University of Adelaide. She is passionate about men's health and wellbeing and this project forms the final study of her PhD.
Holly Evans is an experienced exercise physiologist who is experienced in working with cancer patients prescribing exercise. She is currently completing her PhD under Dr Camille Short working with men with metastatic prostate cancer patients.
Dr Camille Short is the primary supervisor of the team. Camille is a behavioural scientist and research fellow at the Freemasons Foundation Centre for Men's Health, School of Medicine, University of Adelaide. She completed her PhD in behavioural science at the University of Newcastle in 2013. Her work is cross-disciplinary, incorporating evidence and theory from health, social and cognitive psychology, computer science, marketing, exercise physiology, nutrition, oncology, and public health. She has attracted over 1 million AUD in research funding and currently holds a prestigious National Health and Medical Research Council Fellowship awarded by the Australian Government.
Professor Gary Witter is the Head of the Discipline of Medicine, and Senior Consultant Endocrinologist at the New Royal Adelaide Hospital. He is Director of the Freemasons Foundation Centre for Men’s Health Research, and a founding member of the Centre of Research Excellence in Nutritional Physiology. He heads the Centre for Nutrition and Gastrointestinal Diseases within the Nutrition Theme at the South Australian Institute for Health and Medical Research. He is also a lead researcher on the Australian National Health and Medical Research Council's Centre for Excellence, Centre for Prostate Cancer Survivorship (http://prostatecancersurvivorship.org.au)
If you have any questions or queries please feel free tocontact PhD student Amy Finlay on email; firstname.lastname@example.org , or call (08) 8128 4056Supervisor: Dr Camille Short, email: Camille.email@example.com
What if I have a complaint or any concerns?The study has been approved by the Human Research Ethics Committee at the University of Adelaide (approvalnumber H-2017-101). If you have questions or problems associated with the practical aspects of your participation inthe project, or wish to raise a concern or complaint about the project, then you should consult the PrincipalInvestigator. If you wish to speak with an independent person regarding a concern or complaint, the University’spolicy on research involving human participants, or your rights as a participant, please contact the Human ResearchEthics Committee’s Secretariat on:Phone: +61 8 8313 6028Email: firstname.lastname@example.org Post: Level 4, Rundle Mall Plaza, 50 Rundle Mall, ADELAIDE SA 5000Any complaint or concern will be treated in confidence and fully investigated. You will be informed of theoutcome.
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